Friday 11 December 2009


I've become quite a wizz at power packing. Like a whirling dervisher I can pack a hospital bag in the blink of an eye. On Tuesday morning we left for hospital again, Tuesday afternoon OG had a Cholangiogram MRI and last night we were back home. The consultant is aghast that OG will not stay in hospital, because, apart from what is going on with his liver, Guillaine-Barre is a very serious condition in itself and normally requires several months of intensive inpatient therapy But OG is made of stern stuff and very, very determined. And of course at home he is warm, hydrated, clean, optimistic and comfortable, surrounded by loved ones.

This latest test ruled out primary sclerosing cholangitis and cholangiocarcinoma both of which have a truly dreadful prognosis, plus there is no evidence of any other cancer so we were massively relieved at that. But with all the prayers being offered up why should we be surprised!

So the puzzle remains, what caused the liver function tests to return such bad results? Although the liver now appears to be spontaniously recovering it's too early to say that this will continue. And where do we go from here? The consultant now recommends that OG rest at home until after Christmas with weekly blood tests and regular visits from the GP and District Nurse. He will also pop in himself just to keep an eye on how things are going. He has given us his mobile 'phone number and said we can ring him anytime we are worried. In the meantime he encouraged us to arranged for the physio to come in and start weaving his magic to get those useless limbs working again.

I was recommended to read this Patience Strong poem by guineapigmum.

When you know not where to turn, stay still, just where you are.
There is something yet to learn.
Be careful lest you jar the threads that fate is weaving in a pattern you can't see.
Be Passive.

Trust the Hand that works the looms of destiny.
Though it is your wish to set things right and put things straight,
Choose the wiser way.
Have faith.

With patience watch and wait.
There's a purpose in it all, as time will surely prove
And when you least expect it, you will see the mountain move.

I love it. I really need to let go and let God.

And while this has all been going on we are waiting the birth of our 5th greatgrandchild due tomorrow. The cycle of life continues.


Maggie May said...

Every time we go for a result it seems to be bad news. My husband id waiting for bone cancer scans & is in great pain.

I sincerely hope that something can be done for OG. He seems to be a fighter & will probably get better out of spite!
I am like that too. My chemo starts on 22nd December. The alternative Christmas.

Guineapig Mum's poem is lovely. We MUST trust in God. Turn it over to him. At least we know he didn't send the illness. It is just allowed for a time.

Nuts in May said...

Oh Maggie, I am so sorry about Harry. You have both had your fill of bad news lately. You bear it with great fortitude. I know that you faith keeps you going.

ADDY said...

Good news and bad news. Good news...So glad the tests showed no cancer. Bad news... no explanation as to what is causing the problem. Do hope OG recovers well at home and they can get to the bottom of the problem. You both deserve a break from all this.

Anonymous said...

Great news and we would not expect any less from two of the greatest people on Earth.Isaid O.G. is 0ne tough old turkey and will never lie down to any thing. Both of you have defied the odds all your lifetime to-gether with the help of your own Higher Power and the faith you did NOT KNOW you had.
The wonderful love you have for each other and which you have always bestowed on others is nothing when compared to that which the Higher Power shows to the "Triers"
Through adversity we must always retain our sense of humour to help keep things in perspective. As we all discovered many days ago we are only mere specks in this Universe of life who have been graced with a wonderful way of living life to the fullest.
So R&C some tips from the Oracle to aid and speed Sean C. in his recovery;
1. Ensure physio is young female and nimble.
2. Place his roller blades in full view of him.
3. Play background music--Neil Diamond, Glenn Campbell, Beach Boys.
Sit back and enjoy the miracle ,which IS happening!!!
Believe and you will receive. We love you both and you will be o.k. lots of hugs, smiles,and laughs.
P in a Pod & Contessa.

aims said...

I love the poem and will copy and send it to (another) of my friends who is dealing with cancer. Plus I will post it for myself.

Our bodies keep continuing to be a source of exasperation for doctors. I don't think they will ever know how they tick and don't tick.

What we do know is that many people are praying for OG and for you - and for Maggie and Harry.

We will all wait and see - even if it is impatiently. said...

He is so much better off at home Rosiero. With the best will in the world the nurses can't give him the personal care that he needs. said...

Roller blades and music to the rescue then anonymous! You and the Contessa are complete and utter nutters!! But we love you both. said...

Yes, Maggie and Harry are going through a tough time too aren't they aims.

Mare Freeborn said...

Hey R&C! Glad to hear that it's not cancer. When I read the Wikipedia link on the last post my heart sunk a little, so I'm so glad that was not the prognosis. Hope OG is resting up at home and that his recovery continues & is speedy. As always, you guys are in my thoughts & prayers.
Hope & hugs from across the ocean!

Mare Freeborn

Anonymous said...

I have a very bad cold - I thought you should know...; said...

Yes Mare my heart sank too and we were so pleased to hear it wasn't either of those two horrors. However, the pleasure has been shortlived because he is in a very poorly state at the moment. He hasn't been able to leave his bed for a couple of days and won't even let me wash him because he is so sore. My heart breaks.