I would first like to apologise that I haven't had time to reply to comments and/or visit my blogging friends, but life has gone a bit mad here.
On Thursday it became apparent that OG wasn't able to transfer himself from the bed to the loo with my aid any more, The little shuffle movement that enabled him to turn himself in a half circle and plop himself down in his wheelchair had gone which meant that I had to bend down and physically move one foot at a time whilst propping him up. Too perilous and all the while he was freaking out that he would fall.
When the District Nurse saw this she swung into action immediately She ordered the fully adjustable hospital bed with air matress that she has been pressing him to agree to for weeks and rang around to get us help with lifting and moving four times a day. The bed was not a problem it arrived yesterday morning but getting help at Christmas is more difficult and as the help he needs is of the more personal nature he won't allow any of the family to get involved although he may have to accept this, allbeit temporarily.
So yesterday at 0800 the bed arrived and was errected. At 1000 the Community Nurse arrived to inflate the matress which wouldn't co-operate. Some hours and several 'phone calls later it was resolved, but we decided not to transfer him until we were sure it wasn't going to suddenly deflate itself again in the middle of the night.
In the meantime the ladies from the home hospice popped in and spent over an hour telling us why they couldn't help because there were maxed out until next next Wednesday. Then our daughter arrived and got roped in with the discussions.
During their visit OG began acting very weird, halucinating and saying strange things. They said that sometimes medication could do this and if he would agree to go into the hospice in Peterborough for a few days he could be stabalised and made more comfortable. He suddenly became very alert and lucid, going loopy, especially, for some odd reason, when they said it was in Peterborough. They immediately backed off of that suggestion (he has still got his fighting spirit, big time!) but asked if it was OK for them to tell the GP and get the medication changed.
Then the police arrived. At 5.30 pm on Monday night our local village post office had been robbed by three men in ski masks. Their get away vehicle had been dumped near our house and they were doing house to house enquiries in case anyone had seen anything. He asked if we had been in the village at the time. I said "I haven't been outside this house for weeks". He smiled and thought "I could do without comedians like this"!. If only he knew! It's surreal that in the middle of all this life continues remorselessly moving from mundane, to dramatic, to beautiful, to stressful, to funny etc. etc.
Then my lunch arrived. They had a buffet lunch arranged in the office and had kindly bought me over a plate.
Then a parcel arrived. A beautiful basket full of Irish goodies. Unfortunately the sender wasn't named, but I suspect it was from our wonderful Irish friends the Contessa and her toy boy. Thank you so much. We love you, even if you didn't send the parcel!
Then the GP arrived. She was so supportive and we had a long talk. She said they understood how hard it was for me and they would help in any way they could. She knew people that had taken the same decision to stay at home and had never regretted it. I cried, she cuddled me and made me feel better.
In between times the wretched 'phone wouldn't stop ringing with recorded messaged wanting to know if I was in debt and asking if I need help, etc, etc. I need help alright, help to rip this bloody 'phone out of the wall. (Note to self: I must get around to registering with TPS.)
Then we had a really good visit from our beloved granddaughter, her husband, their beautiful new baby Leyton, his older brother Noah (11 months old) and our two beloved great-grandaughters. Our life touched "normal" for a few minutes.
Today threatens to be just as mad. OG gets transferred to the new bed, which will be very traumatic for him, and then no doubt we will have the odd selection of medics, and wanabe medics parading through our home at various times of the day doing their best to help, but , in truth, totally exhausing us. And we can't tell them to stop coming because we desperately need them.
Stop it Ann, be grateful for what you have. Life is sweet. We are surrounded by the most amazingly dedicated and loving family and friends who shower us with beauty, love and kindness. And tomorrow is the day we celebrate the birth of the christ child. Like I said once before recently. the circle of life continues. Happy Christmas everyone.
Rick Polito
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"Transported to a surreal landscape, a young girl kills the first woman she
meets and then teams up with three complete strangers to kill again."
1 day ago


